HERE’S WHY PEOPLE LIVING WITH CYSTIC FIBROSIS NEED SO MUCH SALT

HERE’S WHY PEOPLE LIVING WITH CYSTIC FIBROSIS NEED SO MUCH SALT

Cystic fibrosis (CF) is a progressive, genetic condition most commonly recognized for its effects the lungs, where thick mucus clogs air passageways over time and eventually becomes life-threatening. Less well-known is CF’s harmful effects on the digestive system and sweat glands, leading to malnutrition and increased risk for dehydration during exercise or illness. While these symptoms may seem unrelated, they actually have a common cause: salt. Or, more specifically, a genetic mutation that impacts how cells process salt, which disrupts the flow of electrolytes and water throughout the body. WHAT CAUSES CF? People living with CF have a mutation in their cystic fibrosis transmembrane conductance regulator (CFTR) gene, which is responsible for producing a protein that sits on the surface of our cell membranes and helps regulate the flow of chloride ions into and out of the cell. (Chloride ions are formed when our bodies break down salt into its...
Bryce Chitwood - Jul 15, 2019
SALT-WASTING: SYMPTOMS, CAUSES & TREATMENT

SALT-WASTING: SYMPTOMS, CAUSES & TREATMENT

Patients within the dysautonomia community often run into the term “salt wasting.” Read on to discover the symptoms, possible causes and treatments for this condition. What is salt wasting? Salt wasting—also known as “cerebral salt wasting” (CSW) or “renal salt wasting” (RSW)—is a condition in which the body’s ability to absorb and reabsorb sodium is inhibited. It is sometimes confused with inappropriate secretion of antidiuretic hormone (SIADH), which is a condition with similar symptoms but a different physiology. The tell-tale difference is that CSW is accompanied by high sodium levels in urine and low blood volume, while SIADH is associated with normal to high blood volume. Physical symptoms of CSW include high urine output, excessive thirst and extreme salt cravings. These symptoms are the result of the body attempting to replace what is being inappropriately lost, and people experiencing CSW often can alleviate their symptoms by consuming high amounts of salt and water....
Bryce Chitwood - Jun 13, 2019
HOW TO ADVOCATE FOR YOURSELF IN TODAY’S HEALTHCARE WORLD

HOW TO ADVOCATE FOR YOURSELF IN TODAY’S HEALTHCARE WORLD

This guest post is authored by Amber Nicole of Clearly Alive. Comments belong exclusively to the author and do not necessarily represent the view of Toker Engineering, LLC or the SaltStick brand. Today’s healthcare world is confusing, unnecessarily complex and exhausting. I speak from much experience in the US healthcare system, but I have friends across the globe each with their own struggles as well. It is difficult to be an advocate, but it is also required. Throughout the years, both my mom and I have discovered tips and tricks that help make navigating this system easier. Below are four tips for advocating for yourself or a loved one in today’s healthcare system. 1. REMAIN CALM Be mindful of letting your passion show. This seems like an odd way to start out an article for how to advocate for yourself in today’s healthcare, but it is an extremely important piece of advice....
Bryce Chitwood - Mar 26, 2019
MY DAUGHTER HAS EDS AND POTS. WATCHING HER GROW UP IS AWE-INSPIRING.

MY DAUGHTER HAS EDS AND POTS. WATCHING HER GROW UP IS AWE-INSPIRING.

We’re introducing our Caretaker Perspective Series, a group of blogs that share the experiences of people who care for patients with dysautonomia and POTS. Here, Stacey Greenberg, whose daughter manages EDS and POTS, tells a story about breakfast when her daughter’s condition leaves her too nauseous to eat. It’s 7:45 a.m. The school bus leaves in 30 minutes, but right now, I just want my daughter to eat. As someone who manages Ehlers-Danlos Syndrome (EDS) and postural orthostatic tachycardia syndrome (POTS), my daughter deals with frequent bouts of nausea, and today, it’s hit her in full force. Her stomach is in so much pain that she says no to everything. “Cereal?” I ask. No. “Toast?” No. Eggs, yogurt, fruit? All a very blunt “No, mom!” Moments like these give me glimpses into the seemingly-impossible battles people like my daughter face every day. You see, in this situation, there is no...
Bryce Chitwood - Feb 12, 2019
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