‘I GOT POTS AFTER CONTRACTING COVID-19 SYMPTOMS. HERE’S HOW IT’S CHANGED MY LIFE.’

‘I GOT POTS AFTER CONTRACTING COVID-19 SYMPTOMS. HERE’S HOW IT’S CHANGED MY LIFE.’

Several months after their initial infection, some COVID-19 patients continue to struggle with fatigue, trouble breathing, exercise intolerance, gastrointestinal issues and cognitive difficulties (or “brain fog”). By some estimates, as many as 5% to 15% of COVID-19 patients—termed “long haulers”—can experience these long-lasting symptoms, and around 80% of them are women. Physicians are still examining what can cause this condition, although several theories exist. One potential answer is dysautonomia, which is a medical term that represents a malfunction of the Autonomic Nervous System. Dysautonomia can be triggered by viruses as well as other medical events, such as strokes and heart attacks, and emotional traumas. In situations like this, personal stories can often help increase awareness. Recently, we spoke with Amanda, who was kind enough to share her experience with us. Below you can find our conversation, edited lightly for clarity. Can you describe your journey from COVID-19 to where you are today? In...
Bryce Chitwood - Nov 04, 2020
COULD COVID-19 CAUSE DYSAUTONOMIA?

COULD COVID-19 CAUSE DYSAUTONOMIA?

Recently the Wall Street Journal (WSJ) published an article about long-lasting COVID-19 ramifications for certain people who contracted the SARS-Cov-2 virus.  Several months after the initial infection, some COVID-19 patients continue to struggle with fatigue, trouble breathing, exercise intolerance, gastrointestinal issues and cognitive difficulties (or “brain fog”). By some estimates, as many as 5% to 15% of COVID-19 patients can experience these long-lasting symptoms, and around 80% of them are women.  “If I go outside and walk for 30 minutes it will put me down for two days,” Chelsea Alionar, a 37-year-old who has struggled with COVID-19 symptoms for more than three months, told the WSJ. “If I go to Safeway, I’m down for several days. Leaving the house is not an option.” Unfortunately, some people say they struggle with getting appropriate medical diagnosis and physicians blame their symptoms on anxiety: “They tell me that there’s really no way that I could...
Bryce Chitwood - Sep 23, 2020
6 SALTY SNACKS YOU CAN SAFELY STOCK UP ON

6 SALTY SNACKS YOU CAN SAFELY STOCK UP ON

Going out these days can be trickier, adding an extra layer of complexity to the daily lives of people living with chronic conditions like dysautonomia or Ehlers-Danlos Syndrome (EDS). Many have started buying food and essential items in bulk as a way to reduce the need to head outdoors. While the recent uncertainty is unsettling, there is one silver lining: Often, the foods preferred by people living with conditions like dysautonomia are very high in salt, due to sodium’s ability to help ease symptoms in some patients. As a preservative, salt helps food last a long time, meaning popular “spoonie” treats like potato chips and broth are exactly the kinds of foods someone can safely stock up on.  If you feel up to braving the supermarket, here are some of the best foods you can buy in bulk to help ensure you’re still getting in the salt.  POTATO CHIPS Whether it’s...
Bryce Chitwood - Mar 24, 2020
WHAT’S NEXT FOR THE EHLERS-DANLOS SOCIETY?

WHAT’S NEXT FOR THE EHLERS-DANLOS SOCIETY?

“My journey with EDS has been an enriching journey, a long journey, and a times a very hard journey, but a journey I probably wouldn’t change.” — Lara Bloom, president, founder and CEO of the Ehlers-Danlos Society The Ehlers-Danlos syndromes (EDS) are a group of connective tissue disorders generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility. Commonly, people living with EDS can experience joint pain, early onset of osteoarthritis, skin that tears or bruises easily and severe scarring. Importantly, each person’s experience with an EDS is their own and may not necessarily be the same as another person’s experience. According to the Ehlers-Danlos Society, research statistics show the total prevalence of EDS as one in 2,500 to one in 5,000 people; however, recent clinical experience suggests the syndromes may be more common. While there is...
Bryce Chitwood - Jan 22, 2020
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Danielle Lao on Competing at Wimbledon

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