WHAT’S NEXT FOR THE EHLERS-DANLOS SOCIETY?

WHAT’S NEXT FOR THE EHLERS-DANLOS SOCIETY?

“My journey with EDS has been an enriching journey, a long journey, and a times a very hard journey, but a journey I probably wouldn’t change.” — Lara Bloom, president, founder and CEO of the Ehlers-Danlos Society The Ehlers-Danlos syndromes (EDS) are a group of connective tissue disorders generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility. Commonly, people living with EDS can experience joint pain, early onset of osteoarthritis, skin that tears or bruises easily and severe scarring. Importantly, each person’s experience with an EDS is their own and may not necessarily be the same as another person’s experience. According to the Ehlers-Danlos Society, research statistics show the total prevalence of EDS as one in 2,500 to one in 5,000 people; however, recent clinical experience suggests the syndromes may be more common. While there is...
Bryce Chitwood - Jan 22, 2020
CAN SALT HELP MANAGE MIGRAINES?

CAN SALT HELP MANAGE MIGRAINES?

A few years ago, stories of a miracle drink began circulating through the migraine community, in which patients claimed an elixir of nothing more than water, table salt and lemon juice could stop an attack in its tracks.In 2016, the alleged link between sodium intake and migraine severity was corroborated by researchers at the Huntington Medical Research Institutes in Pasadena, California, who found that of nearly 9,000 adults surveyed between 1999 and 2004, those with the highest levels of sodium in their diets—from products like meat, cheese, bread and table salt—reported the fewest severe headaches and migraines.Since then, the narrative has periodically resurfaced, usually by relying on anecdotal evidence to show that more salt intake can reduce the likelihood of an attack.On their own, these stories may seem compelling, but there is widespread disagreement about their validity. For example, the miracle drink was quickly debunked as a “be-all-end-all,” and other...
Bryce Chitwood - Nov 14, 2019
CRPS: “THE MOST EXTREME CHRONIC PAIN KNOWN TO MAN”

CRPS: “THE MOST EXTREME CHRONIC PAIN KNOWN TO MAN”

In September, SaltStick helped sponsor the 4th Annual Long Island CRPS Awareness Walk & Expo, hosted by the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). Each year, the event helps raise awareness for people living with Complex Regional Pain Syndrome (CRPS), a debilitating and chronic disorder that can cause unrelenting neurologic pain that trumps the pain of cancer, amputation and childbirth. Debbie O’Neal, the event’s co-chair, developed CRPS in 2003 after a 50-pound box of steel fell and hit her while at work, leaving her permanently disabled. Along with being a proud wife, mother and grandmother, Debbie is a passionate advocate for spreading awareness about CRPS. We recently spoke to Debbie about her experience living with CRPS, including the challenges, treatments and research that’s being done in the field. Below, you can find a transcript of our conversation, lightly edited for brevity and clarity. Tell us about CRPS/RSD (General overview: symptoms, challenges). No one...
Bryce Chitwood - Oct 21, 2019
WHY DO WE FAINT?

WHY DO WE FAINT?

Every year, three percent of all emergency room visits are caused by someone fainting. While the act of passing out is generally not fundamentally dangerous, losing consciousness can be harmful if a person cannot control his or her fall (to avoid a sharp object, for example). People living with autonomic disorders such as POTS or vasovagal syncope are usually familiar with the fainting experience, which can be unpleasant and accompanied by sweating, nausea and intense feelings of anxiety. It is common to wonder whether anything can be done to alleviate or prevent fainting spells altogether. In this blog, we dive into the science to explain what causes fainting. BLOOD FLOW AND THE BRAIN Fainting, known as “syncope” (pronounced: SING kuh pee) in the medical community, is defined by the U.S. National Institutes of Health as a temporary loss of consciousness due to the sudden decline of blood flow to the brain. When we go...
Bryce Chitwood - Aug 14, 2019
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